Down Syndrome Indiana Parent Loop

If you are a parent of an individual with Ds in Indiana and interested in joining our email loop, please email your request to info [at] indianadsf [dot] com. Please include your location and child's age. This is a closed loop for Indiana parents only.

International

Best Buddies
Providing opportunities for one-to-one friendships and integrated employment for people with disabilities

Dad’s Appreciating Down Syndrome

International Mosaic Down Syndrome Association

National (USA)

Best Buddies
Providing opportunities for one-to-one friendships and integrated employment for people with disabilities

Buddy Walk
The Buddy Walk is a one-mile walk in which anyone can participate without special training. Buddy Walk was established in 1995 by the National Down Syndrome Society to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclus

Mosaic Down Syndrome
Site for Mosaic Down syndrome, a chromosomal variant of Down syndrome

National Association for Down Syndrome
NADS is the oldest organization in the country serving individuals with Down syndrome and their families.

National Down Syndrome Congress
It is the purpose of the National Down Syndrome Congress to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

National Down Syndrome Society
The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.

State/Local

Indiana: Down Syndrome Family Support and Advocacy Group
Michiana area, Northern Indiana and Southern Michigan

Indiana: Down Syndrome Support Association of NorthEast Indiana

Indiana: Down Syndrome Support Association of Southern Indiana

5 Minutes for Special Needs
Support, insight, and inspiration. Part of the 5 Minutes for Mom series.

Anna’s Angels
Dedicated to promoting research for Down syndrome

Annie Forts Up Syndrome Fund, Inc.
Providing enrichment opportunities to persons with Down syndrome.

Archie’s Room
Personal website sharing their family story with Down syndrome, heart disease, and pediatric cancer

Band of Angels Press
Founded to create and distribute products starring children with Down syndrome.

Be Not Afraid.net
An outreach to parents with poor prenatal diagnosis

Bernadette Resha
Website of an artist who happens also to have been born with Down syndrome

Beyond Play
Early Intervention Products for Young Children with Special Needs

Brad Hennefer-Golf for Life
Providing Golf Opportunities to Individuals with Down Syndrome

Bridget’s Light
We welcome readers into our lives with the hope of furthering understanding of Down syndrome, and helping others see how beautiful life is for us with Bridget as a part of our family…

Buddy Walk
The Buddy Walk is a one-mile walk in which anyone can participate without special training. Buddy Walk was established in 1995 by the National Down Syndrome Society to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclus

Buddy Walk Video, Times Square 2007
Video of the NDSS-sponsored Buddy Walk as it went through Times Square, New York City

Campaign for Down Syndrome
Blog tracking genetic research and its social implications, presented by Renate Lindeman

CaringBridge website of John Bremer
John was diagnosed with Acute Lymphoblastic Leukemia (A.L.L.) in June 2005 and will finish treatment in August 2008

Chris Burke
Site for the Chris Burke band. Chris is best known for the four years he spent playing Charles “Corky” Thatcher on the hit ABC-TV show “Life Goes On” and his reoccurring role as Taylor, the angel of faith on the hit CBS-TV show “Touched By An Angel”.

Club NDSS
A web site for people with Down syndrome and other developmental disabilities

Colin & Katrina’s Family Website
Includes the story of their son’s “heart story,” information everyone should learn, and links to the web resources this Edmonton family found valuable.

Communicating Partners (Dr. James D. McDonald)
Helping Parents Help Children: parents are in the best position to make sure their child develops social and communicative skills to their potential.

Diagnosis Down Syndrome
Lee family website of information and encouragement

Disability Solutions
A free publication for families and others interested in Down syndrome and developmental disabilities

Down Syndrome Educational Trust
The Down Syndrome Trust works around the world to improve development, education, and social achievements of people living with Down syndrome.

Down Syndrome for New Parents
A resource for those who love someone with Down syndrome

Down Syndrome Health Issues by Len Leshin
Resource site by Pediatrician who is also a parent of a child with Down syndrome

Down Syndrome Online
“Comprehensive, up-to-date and reliable information, guidance and news about Down syndrome.” Published by the Down Syndrome Educational Trust

Down Syndrome Quarterly
Publication (Academic) of the Down Syndrome Research Foundation

Down Syndrome Research Online Advocacy Group
Bridging the Gap Between Parents and Down Syndrome Research

DS2008 - Shifting Perspectives
Photographer Richard Bailey’s photograph calendars are noted for his portraits of children and young adults with Down syndrome

Einstein Syndrome
Online Magazine, “Down Syndrome with a Positive Attitude”

Features by Pamela Wilson, BellaOnline’s Special Needs Children Editor
Various articles about Special Needs Children edited by mother of a child with Down syndrome

Gifts:: Mothers Reflect on How Children with Down Syndrome Have Enriched Their Lives

Growth Charts for Children with Down Syndrome

Guide book for medical professional; book for expectant parents
Resource materials for new parents and doctors delivering diagnosis. Created by the design firm Canisterco, with current information and photography.

Jennifer Graf Groneberg
Author of “Road Map to Holland”

Karen Gaffney Foundation
Dedicated to full inclusion in families, schools, communities, and the workplace for people with Down syndrome or other developmental disabilities.

Lili Claire Foundation
Helping children living with neurogenetic conditions, while providing hope and resources to the families who love them. Las Vegas, Los Angeles, Nashville.

Lives Touched by Down Syndrome
website and book featuring personal stories about individuals with Down syndrome.

Loving and Learning
reading and language development techniques and materials

Michael Jurogue Johnson
Michael Johnson, a talented artist who happens to have Down syndrome

Minor Family
An African-American family celebrating the life of their child with Down syndrome.

Mosaic Down Syndrome
Site for Mosaic Down syndrome, a chromosomal variant of Down syndrome

Movie site for documentary “Up Syndrome”
Director’s portrait of charismatic childhood friend, who has Down syndrome. On DVD May 15, 2008, and through Netflix.

Personal Website: Alexandra Rose
Personal website celebrating Alexandra Rose

Pujols Family Foundation site. “faith, family, others”
Foundation of the family of major league baseball player Albert Pujols. Dedicated to the love, care, and development of people with Down Syndrome and their families.

Raymond Hu’s Website
Rayond Hu is an artist with Down syndrome who is known for his Chinese brush paintings of animals, in ink and watercolor. A film documentary of Mr. Hu’s life and work was made in 1997, and a book has been published about his work.

Reece’s Rainbow
International Down Syndrome Orphan Ministry. Adoption, Advocacy, Outreach, and Aid

Seattle College Program for Special Needs Adults
October 17, 2005. NPR radio segment on a community college program for high-functioning students with Down syndrome or other issues. (3 min.)

Signing Time
American Sign Language Videos

Soeren Palumbo Fremd HS Speech 2/28/07
YouTube Video (10 min) High School speech about why the word “retard” is offensive.

Sujeet Desai
Site of a Musician with Down syndrome who lives and works in the Rome, New York area

The Simple Truth of Service, inspired by Johnny the Bagger
Video slideshow about a young man with Down syndrome, and how he wanted to do something special for customers where he works.

Victoria and Me
Photographer Maria de Fatima Campos tells about the first three years with her daughter with Down syndrome in words and pictures. (note: includes artistic semi-clothed pregnancy self-portrait.)

Welcome to Holland
famous 1987 short essay by Emily Perl Kingsley, about having a child with Down Syndrome, though it is applicable to many other birth defects, and is given by many hospitals and child-care professionals to new parents of special-needs children.

What To Say to Parents of a Child With a Diagnosis
This speech was written for a Christian Mothers Of Preschoolers Group. It contains Bible Verses. You have my expressed permission to print this speech, personalize it, customize it, use the research and deliver it to any audience.

World Down Syndrome Day
Down Syndrome International (DSI) has officially earmarked 21 March as World Down Syndrome Day (WDSD).

Wrights Law Special Education Law and Advocacy

Forums/Message Boards

Baby Center.com
Down Syndrome Support Board on BabyCenter.com

Down’s Heart Group
Support and information for those whose child is facing heart surgery, who has had surgery, those whose condition is inoperable, and those whose condition is inoperable, and those families who are bereaved.

DownSyn Forum

P.R.O.U.D. Discussion Board (Parents, Relatives, and Others Understanding Down’s)

T21 Online Community

Uno Mas Down Syndrome Online